FREQUENTLY ASKED QUESTIONS
What is pediatric hospice?
Hospice is a unique philosophy of health care for patients with a life-limiting illness that focuses on enhancing the patient’s quality of life while also providing support to the caregiving family and reassuring families that the dying process will be pain-free and dignified. Pediatric hospice is a specialized field of hospice that focuses care on the youngest patients with terminal diagnoses.
Does choosing Gilchrist Kids mean giving up hope?
No. Gilchrist Kids is about offering comfort and support for patients and families. It is about living those last days, weeks and months to the fullest, taking the time to spend precious moments with loved ones.
Does my child have to give up his current treatments in order to enroll in Gilchrist Kids?
No. Patients on pediatric hospice are allowed to participate in what is called “concurrent care.” This means that children may continue to receive life-sustaining treatments and therapies, like chemotherapy, artificial nutrition and ventilator support, while also receiving the comfort care and care coordination that is the hallmark of hospice.
How will I pay for hospice?
Medicaid and most private insurers will pay the cost of hospice services, but Gilchrist Kids will provide care to any eligible patient regardless of insurance or ability to pay. Through the generosity of our donors, Gilchrist Kids is able to offer financial assistance for patients with no or inadequate insurance.
Much of our time is split between home and hospital. Where will you provide care?
Gilchrist Kids is uniquely positioned to provide care wherever our patients are currently residing. Although most of the team’s visits will occur in the patient’s home, team members will visit the patient and family in the hospital or medical clinic if he/she is receiving care at a different location.
We love our current medical team. Will we have to stop seeing our child’s doctors?
Absolutely not. Gilchrist Kids is aware of the valuable support and guidance your medical team has provided during such a difficult time and considers that team part of ours, working together in the best interests of your child and family.
When should we consider hospice care?
If the treatments for your child’s conditions are no longer restoring or maintaining his/her health and your child is experiencing significant decline, you may want to consider hospice care. For your child to be admitted to hospice, his/her doctor must certify that your child likely has six months or less to live.